This is the memoir of Dave Lewis who was diagnosed at age 14 with Friedreich's Ataxia, a fatal progressive neuromuscular disease. For the next 25 years he challenged himself to live life to the fullest. In the memoir he reminisces about his seemingly normal early years, the origin of his condition and his years of steady physical decline. Throughout the story he shares his emotional highs and lows, the challenges and the losses sprinkled liberally with his unique sense of humor. Sometimes accused of being stubborn, he said he was simply doing what was needed to “make a life in the middle of a nightmare.”
Dave’s editor, Marc Neison, puts it this way, “(Dave was) a teacher with great life lessons to impart. His story is about a man with a progressively debilitating disease coming to terms with what’s in and out of his control; about the nature of his spirit and dignity under these circumstances; about what’s worth asking and refusing help for. Also, his sense of humor defuses any potential awkwardness or melodrama . . . amazingly deft writing, and fun to boot.”
The life issues Dave faced are universal issues: setting goals, facing disappointment, fear of the unknown, the desire for independence and adventure. Whether or not the reader has disabilities of his own, Dave helps us to relate to his challenges and the decisions he makes along the way in his determination to live life to the fullest.
The book is now available from CreateSpace and Amazon. It is also availble as a Kindle ebook from Amazon. Click a button below to order:
A portion of proceeds from each book will be used to support research efforts to cure Friedreich's Ataxia. Orders placed through CreateSpace yield a greater percentage for research.
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